Co-Founder and Executive Director of the International SCN8A Alliance
Gabi Conecker is the Co-Founder and Executive Director of the International SCN8A Alliance, a project of Decoding Developmental Epilepsies which is focused on bringing resources, research and results to the DEE community
Gabi is mother to 10yo Elliott who has SCN8A-DEE and inspired her efforts to find better answers for those with SCN8A. Along with JayEtta Hecker and the SCN8A dad and geneticist who discovered that SCN8A caused epilepsy, Dr. Michael Hammer, she co-founded the International SCN8A Alliance with the mission to work with as many global partners as possible to expedite the search for better care, treatments and quality of life for our loved ones with SCN8A. She also co-founded DEE-P Connections - a partnership of 40+ patient advocacy groups working to improve outcomes for those most severely affected by DEEs via both online education/webinars and joint research into the DEE, including The Inchstone Project, an effort to advance tools able to capture the small but cherished “inchstones,” not milestones, of those most severely affected by DEEs.
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